the truth about chronic illness
There I was last Thursday, sitting at my desk, minding my business when I received a text reminding me of an appointment scheduled for the next week. While I haven’t enjoyed the isolation model we have all been living under, Telehealth has been a gift for people who work long hours where a trip to clinic ...
Wow - 6 months. That is a quality effort for not writing. I'd say I've been busy but that's pretty much the standard in my life so it's not really an excuse. Why am I writing today and not in the last 6-months? A lot has happened - great stuff, not-so-great stuff but I suppose ...
So there I was. This angry, angry girl who decided that if she didn’t fit in, she may as well be completely outside the box. My hair was black, my close were black, my music was loud and heavy. The most disturbing part about all of this was at 16, I understood what I was ...
So I'm in a situation... and it's one of those good/bad situations. Since going back on the Mercaptopurine in April I've had a very long list of side effects. The worst being fatigue. Crohn's comes with a healthy dose of fatigue to start with - which makes sense, it's Auto-Immune so your body is fighting a ...
Let’s go back in time almost 10 years. Back to when I was first diagnosed with Crohn’s Disease. I was angry. And I was entitled to be angry - anger is one of the stages of loss. I had just lost my “old life” so I was working through the grief process. One thing that used ...
I've had a real struggle the last two weeks. I've had Influenza A for a while now and every little action has been harder than it should be. Getting up is hard. Working my main job is hard. Working my second job is hard. Housekeeping is hard. Relating to people is hard. It's all been harder ...
So here I am... on a Tuesday, middle of the day... at home. Am I sick? No - well kinda, but that's a longer story. No, I am officially unemployed for the first time in my adult life. I shouldn't say that. I am actually self employed... but I think that's just semantics at this point. What ...
I had my review last week... I had my butt cheeks clenched for days considering I knew that my GI would probably not approve of my choices in holiday eating establishments. I had the worst feeling that my support person (my husband) would have his phone out showing my doctor that I was eating God ...
This is a very brief post because, quite literally, my panties are in a bunch about something I just read.... Having been born with the assorted party pack of autoimmune disorders I get sent a lot of medical reading - from a lot of different sources. Today I was sent a story about links between two chronic ...
So - I finally had a moment with my sister on the weekend and she is the first person I have physically told that I’m out of remissions. I text my best friend and, well Stocker was there. I think I’ve had problems with getting it out of my mouth. I think I’ve had problems ...
