Down with the Sickness

the truth about chronic illness

  • My Story
  • AboutWho am I?  That’s a very good question. So who am I – really?  That’s a remarkably good question – and one I have only just been able to answer myself. I am a daughter, a sister, a friend and a foe.  I am a lover, a fiancè, a home owner and a mortgage holder.  I am an employee, a manager, a marketer and a graphic artist.  I am a gothic, a groupie and occasionally a weirdo.  I am a writer, a reader and my own worst critic.  I am also chronically ill.  I have Ileocolic, stricturing Crohns disease. I was diagnosed with Crohns Disease on the 28th of April 2010 – after a long struggle with bowl obstructions and a history with the disease dating back up to 20 years. Since my dignosis I am desperatly trying to find balance between all these different aspects of me. My history with the disease As I mentioned above – I have only relatively recently found out the name for the sickness which has been my silent companion for many years.  Doctors now believe that I have had the disease since about the age of 7 – when large ulcers started to…
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07Aug 2021

Abusive relationships

By Amanda 07 Aug 2021 0 COVID, Life Abuse, Abusive Relationship, COVID-19, government Permalink

I need to talk about something. Something hard to talk about. I’m in an abusive relationship with a partner. For 18 months now, this partner has been really controlling over where I go and who I see. To the point they have installed a tracker on my phone. Every time I question them about it, they tell ...

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21Jul 2021

That familiar old feeling.

By Amanda 21 Jul 2021 0 Health, Life, Travel Australia, claustrophobic, Coronavirus, COVID, COVID-19 Permalink

I was ridding such a high after my second dose of Pfizer. I thought, ‘that’s it, COVID-19 is officially over for me’. I don’t think I could have been more wrong. I was sitting in my car this morning, in the usual peak hour traffic, skipping almost every song from my playlist. At first I ...

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28May 2021

This too shall pass.

By Amanda 28 May 2021 0 Health, Life COVID, COVID-19, Pfizer, Vaccination, Vaccine Permalink

Today, I went to Gold Coast University Hospital to have my first COVID-19 vaccination. I was prepared to wait, in a line, for 4-hours to be assured I received my vaccine. I was successfully vaccinated with my first shot of Pfizer - and the resulting feeling is something I wasn’t expecting. No, I’m not talking ...

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22Jun 2020

Ok, so I WILL miss Telehealth….

By Amanda 22 Jun 2020 0 Life Coronavirus, COVID-19, Crohns, Crohns Disease, pathology Permalink

There I was last Thursday, sitting at my desk, minding my business when I received a text reminding me of an appointment scheduled for the next week. While I haven’t enjoyed the isolation model we have all been living under, Telehealth has been a gift for people who work long hours where a trip to clinic ...

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10Jun 2020

I’m chronically ill and I’m also on #teamopenup

By Amanda 10 Jun 2020 0 Life #TeamOpenUp, Coronavirus, COVID-19, Pandemic, Pandemic Life Permalink

So, crazy times right? I have always had an affinity for virus movies - never for a minute did I think I would be living in one, but here we are. This is pandemic living and I didn't think it, or I, would be like this. To be quite frank, I am not coping with the stay ...

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  • Say, do you have the time?
  • Abusive relationships
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  • This too shall pass.
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Down with the Sickness

the truth about chronic illness

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