Wow - 6 months. That is a quality effort for not writing. I'd say I've been busy but that's pretty much the standard in my life so it's not really an excuse. Why am I writing today and not in the last 6-months? A lot has happened - great stuff, not-so-great stuff but I suppose ...
I shudder at the thought…
So I'm in a situation... and it's one of those good/bad situations. Since going back on the Mercaptopurine in April I've had a very long list of side effects. The worst being fatigue. Crohn's comes with a healthy dose of fatigue to start with - which makes sense, it's Auto-Immune so your body is fighting a ...
Maxed out
I had my review last week... I had my butt cheeks clenched for days considering I knew that my GI would probably not approve of my choices in holiday eating establishments. I had the worst feeling that my support person (my husband) would have his phone out showing my doctor that I was eating God ...
My time on Prednisone
Recently I just concluded my first course of Prednisone. I was put on a high oral dose of the drug when I became seriously ill at the beginning of the year. Only 4 people know exactly how sick I was, a few more knew what the treatment for being that ill did to me. After ...
Crohn’s… meet sledge hammer
Just when you walk into a review thinking you know what your doctor is going to say.... I think it's one of the things I hate the most about this disease - how unpredictable it is, well that, and how fast things change. Let me take you back one year.... I was told I was mostly ...
Cut me open… pour me out.
I was so focused on today being a change to a Biological treatment - it almost totally slipped my mind that they weren't the only course of action. So here I am... after my consultation... and I am numb. I have been numb a lot lately with regards to this disease. Who was it again said ...
Clotting Factor
It's been another long gap between posts. I've had a string of big days at my Full Time Job. It frustrates me because - they work me until I'm sick but are still not even close to considering hiring a new body. Facts are - there is way too much work for me alone, being ...
Long in the tooth…
My health spiral can be tracked back to the wisdom tooth I had extracted on the 2nd of November this year. I knew it had the potential to throw things even more out of wack than what they were, but I was fast running out of options. I had been having a debate with my ...
Set back
I know most people would probably think I am dead by now, I realise its been a while. I suppose there are a few reasons for that. Today was my medication review... after the last one, it could have gone either way - but I had a feeling it would be bad. This week has really been ...
Use only as directed.
When do you know better than your specialist? Your specialist that has been to University for practically his entire adult life? The correct answer is never. That makes me feel just a little bit extra guilty about what I have been doing lately. Back in April, I had the review which resulted in me being taken off ...