I have Crohn’s Disease.
It’s a very simple thing to say – and it does get easier to say as time goes on. It’s still not something I like to publish about myself because of the way people look at you. We’re meant to live in this accepting world – but the reality is, few people are built to deal with the realities of chronic illness. Whether that be dealing with suffering from it, dealing with a loved one with it or dealing with hearing about it.
Chronic illness has a stigma attached to it – part of what I’m trying to do with this blog is find out why the stigma exists and perhaps change just a few peoples minds.
I was diagnosed with the disease in 2010 after what seems like a lifetime of suffering from a disease that everyone wanted to ignore. My medical records infer that I had the disease from the age of about 8 but I may have been born with it.
I started this story just before I got my “official” diagnosis. It chronicles not only my fears, thoughts and triumphs but also the reactions of the people in my life.
I know from experience that sometimes all you need someone to say is “that sucks” and all you need to believe is that your not crazy. I hope I can help people at all different stages of the disease with my story…
It really does suck to have Crohn’s Disease and trust me… you’re not crazy.