the truth about chronic illness
I, like many people who live with chronic or invisible illness, enjoy travelling. Since my diagnosis we've kept our travel fairly local choosing destinations like Fiji and New Zealand (which has reciprocal health care with Australia). We've done this because my illness has been unpredictable and also because we haven't had the cash stream to ...
So there I was - waking up to the the first Crohn's free morning in my life... It was surreal. Painful, but surreal. I didn't sleep much during the night - as advised by the nursing staff I did use the pain medication I had to get as much rest as possible, but with hourly obs... ...
It felt like forever away whilst I was working through my mysterious heart problem – then all of a sudden it was here. The day I dreaded – but also the day of my salvation.
Wracked with nerves I prepared for my small bowel resection to hopefully curb my out of control Crohn’s Disease.
A Crohns patient with Wolff Parkinson White – that makes me about one in a million – right?
It’s May already - I can’t believe how fast this year has been going. Crohn’s and Colitis Awareness Month is here again. It’s a time for reflection and sharing for friends, family and sufferers of the diseases. Sometimes I think that sharing a story is more important than a donation for us - we’re still ...
"Don't ask the price I paid... I must live with my quiet rage." I think that's whats getting to me. The price I paid - for only a few weeks of remission... I've known I've been in relapse for a few weeks now. It started with that intense exhaustion that can't be explained away by "a few ...
Working full time with Crohn’s – a new complication in every day.
I'm pretty angry... today I'm more convinced than ever the Government has a bias toward protecting stupid people... The whole point of this blog is so I can talk about my Chronic Illness without forcing the details on people who don't want to know - if you're here I assume you've come looking. So, obviously, I'm ...
The most true, correct and powerful thing that I have seen in months is the quote “Pain changes people”. It’s a doubled edged sword – the changes in me have meant I can cope with pain… it also means my attitude towards pain has shifted. I’m having to embrace this change – because I know its a survival mechanism and I know the worse is still yet to come.
