It's easy for casual readers to think "wow, your doing "all the things", you must be better, right". A persons health is complicated. It's a intricate web of checks and balances. "Healthy" people pay little attention to it, and only get their health seen to if they feel bad. Chronically ill people are constantly managing, usually ...
“I’ve never known anything more dangerous than my own mind…”
I've had a real struggle the last two weeks. I've had Influenza A for a while now and every little action has been harder than it should be. Getting up is hard. Working my main job is hard. Working my second job is hard. Housekeeping is hard. Relating to people is hard. It's all been harder ...
Already at acceptance
So - I finally had a moment with my sister on the weekend and she is the first person I have physically told that I’m out of remissions. I text my best friend and, well Stocker was there. I think I’ve had problems with getting it out of my mouth. I think I’ve had problems ...
Four items or less
I'm pretty angry... today I'm more convinced than ever the Government has a bias toward protecting stupid people... The whole point of this blog is so I can talk about my Chronic Illness without forcing the details on people who don't want to know - if you're here I assume you've come looking. So, obviously, I'm ...
Pain changes people
The most true, correct and powerful thing that I have seen in months is the quote “Pain changes people”. It’s a doubled edged sword – the changes in me have meant I can cope with pain… it also means my attitude towards pain has shifted. I’m having to embrace this change – because I know its a survival mechanism and I know the worse is still yet to come.
My breaking point
Its been a hard week... and on Sunday night... I snapped. It was due to many things - probably most notably the fact I had been ill since before Christmas with almost no reprieve. In fact... it appears to the casual observer that I am getting worse. I am at the limit of what conventional ...
April Fool
It seems every time I think I have turned a corner with this disease - I am bought back down to earth with a thud not long after. Yesterday was the start of a new month - and coincidentally April Fools Day. I felt like I was the only one truly fooled. I thought I was ...