the truth about chronic illness
"Don't ask the price I paid... I must live with my quiet rage." I think that's whats getting to me. The price I paid - for only a few weeks of remission... I've known I've been in relapse for a few weeks now. It started with that intense exhaustion that can't be explained away by "a few ...
Working full time with Crohn’s – a new complication in every day.
Recently I just concluded my first course of Prednisone. I was put on a high oral dose of the drug when I became seriously ill at the beginning of the year. Only 4 people know exactly how sick I was, a few more knew what the treatment for being that ill did to me. After ...
Tell me, how low do you have to get to truly believe that you are getting used and disrespected at work because you are not pretty enough? Well ladies and gentlemen, I have reached that point. Friday I just sat in the car sobbing because the only conclusion I could think of that I was getting used ...
I've been treated for Crohn's disease for two whole years - and I'm into my third. On contact, a Crohn's patient with active disease is usually put on a moderate course of a corticosteriod called Prednisone. Its used to treat a range of autoimmune diseases on contact or as patients come out of remission. So its ...
So, the big question - why was I so upset yesterday that my post didn't make sense? I would put some of that down to the funny fever I was running - but some of it is really pent up anger - directed towards a lot of people and things. Put that together with the fever ...
Just when you walk into a review thinking you know what your doctor is going to say.... I think it's one of the things I hate the most about this disease - how unpredictable it is, well that, and how fast things change. Let me take you back one year.... I was told I was mostly ...
Yesterday was the official One Year Anniversary of my Crohn's Diagnosis. I didn't notice until then - but I started my Imuran again last night - coincidence or synergy? You be the judge. How do I feel...? I like I am over worked and under paid! Oh, about Crohn's. Er.... it sucks. But yesterday was just ...
For about 6 years I have believed that I would need all four of my wisdom teeth out. For 6 years I have managed to have more important things to do with the $3000 I would require for dental surgery on that scale. Since finalising my care plan and finding a dentist operating under it, I ...
My partners going to quit his job, we will lose $2k in holiday half booked, we will also lose the house 6 weeks after he quits, I am getting 4 hours sleep a night, I am working like a dog here and at home for less than I am worth, I feel like I have been run over by a train and backed over by a mini bus, I have no iron in my body, I do have an incurable disease crawling around in my bowel and last night I woke myself up screaming and seeing spiders crawling all over me and our bed. But hey, I can take it – how about a bit more stress with all that?
