Going back even 3 years - the thought of having less than $5k in savings at any one time (for an emergency) would cause me so much stress - it would keep me awake at night (or, that could of just been the Prednisone)… things have really really changed for me and for us. I’m pleased ...
The magical express pass
Hahahaha. Almost 2 weeks ago, on the 10th of June I was at the hospital for my cardiology appointment with, for lack of better terminology, the electrical specialists of the heart. After going on (and on and on) about risks and pacemakers and open heart surgery and DVT we finally got to the wait time. ...
More medication…
Medication. It's pretty much how I set my clock. I take a bunch in the morning, a bunch at night and it fluctuates depending on how sick I am. Right now I'm taking a new medication to try and regulate my heart rate - which admittedly has been totally out of control. It's taken me a long ...
Mam, I think we’ve found the problem. You’ve broken your abs.
Mam, I think we’ve found the problem. You’ve broken your abs.
The day after…
So there I was - waking up to the the first Crohn's free morning in my life... It was surreal. Painful, but surreal. I didn't sleep much during the night - as advised by the nursing staff I did use the pain medication I had to get as much rest as possible, but with hourly obs... ...
The day of…
It felt like forever away whilst I was working through my mysterious heart problem – then all of a sudden it was here. The day I dreaded – but also the day of my salvation.
The day before….
Wracked with nerves I prepared for my small bowel resection to hopefully curb my out of control Crohn’s Disease.
When you feel like giving up… remember why you started
After a lifetime of fighting and three years of medication that at times could be worse than Crohn’s itself, I decided that surgery was my only recourse.
Put your heart into it…
A Crohns patient with Wolff Parkinson White – that makes me about one in a million – right?
Relapse
"Don't ask the price I paid... I must live with my quiet rage." I think that's whats getting to me. The price I paid - for only a few weeks of remission... I've known I've been in relapse for a few weeks now. It started with that intense exhaustion that can't be explained away by "a few ...