Where have I been for the last few weeks.... Trying to swallow the huge mouthful I decided to bite off on behalf of both Stocker and I. Last year - we made a decision that has heavily impacted our well being. We decided that we no longer wanted to live where we are. I'm not talking ...
JSS
"I get you more now, your like an Island of one.... You had to be." This is so messy. I debated for a long time whether to put it down - but I feel like it's been rolling around in my head for a while so perhaps it's a good time to get it out in ...
More medication…
Medication. It's pretty much how I set my clock. I take a bunch in the morning, a bunch at night and it fluctuates depending on how sick I am. Right now I'm taking a new medication to try and regulate my heart rate - which admittedly has been totally out of control. It's taken me a long ...
Wolff-Parkinson-WHAT?
My long awaited Cardiology appointment was today. "Ah - sorry?", most of you would be saying. Don't I have a bowel condition? Yes. And a skin condition and god knows how many others. What's that old saying - the harder they look the more they find? Well pre-op they look pretty darn hard and that's were all ...
Glass towers….
Warning: This post is probably going to contain some of the most graphic language I have ever used in a blog in my entire life. Why? Because I'm not sure my regular, every day words can express my disgust at what's happened to me in the last few days. I was born into this world broken. And ...
Wait.. that can’t be my weight.
I'm a stress eater. I always have been and I venture to say I always will be. It's a problem I know I have but it's also a cycle I haven't been able to break 33 years. The last 8 months for me have been the very definition of stress. I've been juggling two very intense ...
Travel insurance for the chronically ill
I, like many people who live with chronic or invisible illness, enjoy travelling. Since my diagnosis we've kept our travel fairly local choosing destinations like Fiji and New Zealand (which has reciprocal health care with Australia). We've done this because my illness has been unpredictable and also because we haven't had the cash stream to ...
“You’re not allowed to be sick here”
I have had a volatile relationship with my parents for about the last... er.... 6 or 7 years. Why? You know, I'm not really sure. After my first divorce in 2004 I became pretty fiercely independent. To some extent, I think that's been a personality trait that has helped with my illness. In the last 2 ...
Why I stopped calling myself an Atheist
In the dictionary Atheism is defined as: "disbelief or lack of belief in the existence of God or gods." I don't believe in the "God" described by religions around the world. I'm not religious or faithful. I also no longer call myself an Atheist. This is why. Rewind to the year 2000. I wasn't quite yet 18 - ...
It’s not a tumour
I kinda gave it away in the title didn't I? I had my head CT last week and got the results - there is no tumour or growth pressing on anything which is a relief - because historically Christmas time is when I tend to land myself in hospital, historically speaking. It's not a big deal ...