Just when you walk into a review thinking you know what your doctor is going to say.... I think it's one of the things I hate the most about this disease - how unpredictable it is, well that, and how fast things change. Let me take you back one year.... I was told I was mostly ...
Under 59 and feeling fine.
Okay - so feeling "fine" is an exaggeration. Lets say, feeling better. People close to me have probably been aware of the struggle I've had with my weight since starting the Crohn's medication. For those of you who don't know, prior to being medicated I had never weighed over 60kgs in my life.... no not once. ...
Cut me open… pour me out.
I was so focused on today being a change to a Biological treatment - it almost totally slipped my mind that they weren't the only course of action. So here I am... after my consultation... and I am numb. I have been numb a lot lately with regards to this disease. Who was it again said ...
Square One.
I had a draft half written the other day - the day after Valentines day... It basically said that my "Spin Out" feeling has been identified as a fast, unexpected and unexplained drop in blood pressure... but its obviously not killing me - no call from the IBD department telling me to come in. I would ...
Clotting Factor
It's been another long gap between posts. I've had a string of big days at my Full Time Job. It frustrates me because - they work me until I'm sick but are still not even close to considering hiring a new body. Facts are - there is way too much work for me alone, being ...
My life of crime…
I need something to lighten what has been a very long week - so I will tell one of my much anticipated holiday stories. On August the 7th my partner and I flew from Australia to Christchurch, New Zealand. It would be the first trip away since we found out about my Crohn's. It should have ...
Welcome home….
Its 11 days since we arrived back in Australia. 11 very long, hard days. I expect people to read this critically – again who could possibly want to live somewhere other than “the lucky county”? Monday the 29th of August was my first day back at work… I tried to be positive. I got up and ...
Run Forrest… run.
I have many times (some times many times per day) where I feel like Forrst Gump. You know the kid that just doesn't get it. I am finding that I am feeling like that particularly at work at the moment. I have very few days where I have come home from a run with the dog, ...
Use only as directed.
When do you know better than your specialist? Your specialist that has been to University for practically his entire adult life? The correct answer is never. That makes me feel just a little bit extra guilty about what I have been doing lately. Back in April, I had the review which resulted in me being taken off ...
I can’t wait…..
Hi. My name is Amanda and I have Crohn's Disease. That's kind of how I feel right now... You see I have just joined my first site/group/support page. A year ago when I visited some - I promised myself that I wasn't going to register. I suppose I saw some of the posts on some and ...