It seems every time I think I have turned a corner with this disease - I am bought back down to earth with a thud not long after. Yesterday was the start of a new month - and coincidentally April Fools Day. I felt like I was the only one truly fooled. I thought I was ...
Happy First Anniversary
Today one year ago I was recovering from my first Colonoscopy. Today one year ago I was "unofficially" diagnosed with Crohn's disease. I really threw myself into work today - this is an anniversary I'd rather not have. I must admit - I did get a lot done. But none of it stopped me thinking of ...
A family tradition we’d rather not have.
Bowel disease is in our family. I might be the only one with Crohn's, but I am sad to say that bowel disease is well and truely in our family tree. This week has been the hardest week i my life to date - and to put it in perspective, the entirity of 2010 was full ...
How about some extra stress with your stress?
My partners going to quit his job, we will lose $2k in holiday half booked, we will also lose the house 6 weeks after he quits, I am getting 4 hours sleep a night, I am working like a dog here and at home for less than I am worth, I feel like I have been run over by a train and backed over by a mini bus, I have no iron in my body, I do have an incurable disease crawling around in my bowel and last night I woke myself up screaming and seeing spiders crawling all over me and our bed. But hey, I can take it – how about a bit more stress with all that?
… it’s who you know.
It’s not what you know; its who you know. Actually its both. Be informed, be strong and fight for serious illness like IBD to finally be taken seriously.
The good, the bad and the f***ing ugly
A week filled with good, bad and ugly events…
… but will I survive the week.
Yay to avoiding hospital. Boo to an uncertain future.
I have Crohn’s Disease
They are the 4 words that have shaped the last 8 months of my life. Most of my experience with them has been negative. Its true, people are afraid of things they don't understand. Some are starting to come round now though. Reluctant to admit it at the start - many people have abdominal problems ...
My ‘almost’ remission.
Hears to my ‘almost’ remission, hears to the end of the year of hell, and hears to me… doing whats right, not because its easy or enjoyable. But because its right and because I want to feel as well as I can – for as long as I can
Chemo or Crohns?
So my choices are take a drug which is akin to mild Chemotherapy or risk having my Crohns return worse than ever… what a choice!