It’s May already - I can’t believe how fast this year has been going. Crohn’s and Colitis Awareness Month is here again. It’s a time for reflection and sharing for friends, family and sufferers of the diseases. Sometimes I think that sharing a story is more important than a donation for us - we’re still ...
Four items or less
I'm pretty angry... today I'm more convinced than ever the Government has a bias toward protecting stupid people... The whole point of this blog is so I can talk about my Chronic Illness without forcing the details on people who don't want to know - if you're here I assume you've come looking. So, obviously, I'm ...
Care Factor
Today $6m was added to the Hendra Research fund in Australia by the Queensland and New South Wales after a Kelpie tested positive to the disease. Hendra Disease, until yesterday, was only found in flying foxes, horses and humans. Hendra's mortality rate is high. I want to start off by saying I agree with the additional ...
I can’t wait…..
Hi. My name is Amanda and I have Crohn's Disease. That's kind of how I feel right now... You see I have just joined my first site/group/support page. A year ago when I visited some - I promised myself that I wasn't going to register. I suppose I saw some of the posts on some and ...
April Fool
It seems every time I think I have turned a corner with this disease - I am bought back down to earth with a thud not long after. Yesterday was the start of a new month - and coincidentally April Fools Day. I felt like I was the only one truly fooled. I thought I was ...
How about some extra stress with your stress?
My partners going to quit his job, we will lose $2k in holiday half booked, we will also lose the house 6 weeks after he quits, I am getting 4 hours sleep a night, I am working like a dog here and at home for less than I am worth, I feel like I have been run over by a train and backed over by a mini bus, I have no iron in my body, I do have an incurable disease crawling around in my bowel and last night I woke myself up screaming and seeing spiders crawling all over me and our bed. But hey, I can take it – how about a bit more stress with all that?
I have Crohn’s Disease
They are the 4 words that have shaped the last 8 months of my life. Most of my experience with them has been negative. Its true, people are afraid of things they don't understand. Some are starting to come round now though. Reluctant to admit it at the start - many people have abdominal problems ...