Hahahaha. Almost 2 weeks ago, on the 10th of June I was at the hospital for my cardiology appointment with, for lack of better terminology, the electrical specialists of the heart. After going on (and on and on) about risks and pacemakers and open heart surgery and DVT we finally got to the wait time. ...
Broken Hearted
Today I finally met with the staff from the Cardiac Cath Lab - the department that will be handling my heart procedures that follow. In total they spend almost two hours with me. I have to say they were both very informative and just a little strange. Any person that can look at an ECG and ...
Already at acceptance
So - I finally had a moment with my sister on the weekend and she is the first person I have physically told that I’m out of remissions. I text my best friend and, well Stocker was there. I think I’ve had problems with getting it out of my mouth. I think I’ve had problems ...
JSS
"I get you more now, your like an Island of one.... You had to be." This is so messy. I debated for a long time whether to put it down - but I feel like it's been rolling around in my head for a while so perhaps it's a good time to get it out in ...
Wolff-Parkinson-WHAT?
My long awaited Cardiology appointment was today. "Ah - sorry?", most of you would be saying. Don't I have a bowel condition? Yes. And a skin condition and god knows how many others. What's that old saying - the harder they look the more they find? Well pre-op they look pretty darn hard and that's were all ...
“You’re not allowed to be sick here”
I have had a volatile relationship with my parents for about the last... er.... 6 or 7 years. Why? You know, I'm not really sure. After my first divorce in 2004 I became pretty fiercely independent. To some extent, I think that's been a personality trait that has helped with my illness. In the last 2 ...
It could be a Tumour…
Having a chronic illness sucks. It sucks for a lot of reasons – but let me tell you the one REALLY getting to me at the moment…. It sucks because every time your doctors fix something – some other shit breaks.
Searching for fulfilment in all the wrong places
Rejoining the world after such a BIG thing has happened to you that people just don’t get? Not the easiest thing to do….
Mam, I think we’ve found the problem. You’ve broken your abs.
Mam, I think we’ve found the problem. You’ve broken your abs.
The day after…
So there I was - waking up to the the first Crohn's free morning in my life... It was surreal. Painful, but surreal. I didn't sleep much during the night - as advised by the nursing staff I did use the pain medication I had to get as much rest as possible, but with hourly obs... ...