Medication. It's pretty much how I set my clock. I take a bunch in the morning, a bunch at night and it fluctuates depending on how sick I am. Right now I'm taking a new medication to try and regulate my heart rate - which admittedly has been totally out of control. It's taken me a long ...
Wolff-Parkinson-WHAT?
My long awaited Cardiology appointment was today. "Ah - sorry?", most of you would be saying. Don't I have a bowel condition? Yes. And a skin condition and god knows how many others. What's that old saying - the harder they look the more they find? Well pre-op they look pretty darn hard and that's were all ...
It’s not a tumour
I kinda gave it away in the title didn't I? I had my head CT last week and got the results - there is no tumour or growth pressing on anything which is a relief - because historically Christmas time is when I tend to land myself in hospital, historically speaking. It's not a big deal ...
Happy second anniversary
As the post name suggests - yesterday I started my third year as a diagnosed Crohn's patient. How do I feel? Alright - get ready.... I feel shit. Yes, honestly, really shit. But not so much because of the Crohn's thing. You see, right after my review last Thursday, I picked up a case of the flu ...
No woman is an island…
After the stress of the few weeks leading up to my medical review and the shock of my doctors conclusions... I have to say our vacation to Fiji couldn't have come at a better time. We are back now - and I haven't felt this relaxed in a very long time. However... the trip wasn't without ...
Clotting Factor
It's been another long gap between posts. I've had a string of big days at my Full Time Job. It frustrates me because - they work me until I'm sick but are still not even close to considering hiring a new body. Facts are - there is way too much work for me alone, being ...
The nightmare after Christmas
I woke up last night from a nightmare in a cold sweat. In my nightmare I had either forgot to take my medication, or I had taken the wrong medication. Only someone who has continuing health problems has nightmares like that... I swear. I am meant to be back at work today (just my design job) ...
My life of crime…
I need something to lighten what has been a very long week - so I will tell one of my much anticipated holiday stories. On August the 7th my partner and I flew from Australia to Christchurch, New Zealand. It would be the first trip away since we found out about my Crohn's. It should have ...
Welcome home….
Its 11 days since we arrived back in Australia. 11 very long, hard days. I expect people to read this critically – again who could possibly want to live somewhere other than “the lucky county”? Monday the 29th of August was my first day back at work… I tried to be positive. I got up and ...
Use only as directed.
When do you know better than your specialist? Your specialist that has been to University for practically his entire adult life? The correct answer is never. That makes me feel just a little bit extra guilty about what I have been doing lately. Back in April, I had the review which resulted in me being taken off ...