My name is Amanda and as the name of my blog and this first story suggests, I have Ileocolic Crohn’s disease. The scariest thing about what I have is how little is known and published about it. There is a bit of stuff on Wikipedia, but all the material is very tactfully worded with a lot of conjecture. The reality is – no one really knows what it is, what causes it or what puts suffers into acute phases of it. So here I am. I have no hard medical facts, apart from what’s on my reports and what I am told, but here I will post my story. How I was diagnosed and cope with Crohns Disease.