I've been treated for Crohn's disease for two whole years - and I'm into my third. On contact, a Crohn's patient with active disease is usually put on a moderate course of a corticosteriod called Prednisone. Its used to treat a range of autoimmune diseases on contact or as patients come out of remission. So its ...
Crohn’s… meet sledge hammer
Just when you walk into a review thinking you know what your doctor is going to say.... I think it's one of the things I hate the most about this disease - how unpredictable it is, well that, and how fast things change. Let me take you back one year.... I was told I was mostly ...
Long in the tooth…
My health spiral can be tracked back to the wisdom tooth I had extracted on the 2nd of November this year. I knew it had the potential to throw things even more out of wack than what they were, but I was fast running out of options. I had been having a debate with my ...
The nightmare after Christmas
I woke up last night from a nightmare in a cold sweat. In my nightmare I had either forgot to take my medication, or I had taken the wrong medication. Only someone who has continuing health problems has nightmares like that... I swear. I am meant to be back at work today (just my design job) ...
Set back
I know most people would probably think I am dead by now, I realise its been a while. I suppose there are a few reasons for that. Today was my medication review... after the last one, it could have gone either way - but I had a feeling it would be bad. This week has really been ...
My life of crime…
I need something to lighten what has been a very long week - so I will tell one of my much anticipated holiday stories. On August the 7th my partner and I flew from Australia to Christchurch, New Zealand. It would be the first trip away since we found out about my Crohn's. It should have ...
Care Factor
Today $6m was added to the Hendra Research fund in Australia by the Queensland and New South Wales after a Kelpie tested positive to the disease. Hendra Disease, until yesterday, was only found in flying foxes, horses and humans. Hendra's mortality rate is high. I want to start off by saying I agree with the additional ...
I can’t wait…..
Hi. My name is Amanda and I have Crohn's Disease. That's kind of how I feel right now... You see I have just joined my first site/group/support page. A year ago when I visited some - I promised myself that I wasn't going to register. I suppose I saw some of the posts on some and ...
One {official} Year In.
Yesterday was the official One Year Anniversary of my Crohn's Diagnosis. I didn't notice until then - but I started my Imuran again last night - coincidence or synergy? You be the judge. How do I feel...? I like I am over worked and under paid! Oh, about Crohn's. Er.... it sucks. But yesterday was just ...
… just like… pulling teeth.
For about 6 years I have believed that I would need all four of my wisdom teeth out. For 6 years I have managed to have more important things to do with the $3000 I would require for dental surgery on that scale. Since finalising my care plan and finding a dentist operating under it, I ...