Down with the Sickness

the truth about chronic illness

  • My Story
  • AboutWho am I?  That’s a very good question. So who am I – really?  That’s a remarkably good question – and one I have only just been able to answer myself. I am a daughter, a sister, a friend and a foe.  I am a lover, a fiancè, a home owner and a mortgage holder.  I am an employee, a manager, a marketer and a graphic artist.  I am a gothic, a groupie and occasionally a weirdo.  I am a writer, a reader and my own worst critic.  I am also chronically ill.  I have Ileocolic, stricturing Crohns disease. I was diagnosed with Crohns Disease on the 28th of April 2010 – after a long struggle with bowl obstructions and a history with the disease dating back up to 20 years. Since my dignosis I am desperatly trying to find balance between all these different aspects of me. My history with the disease As I mentioned above – I have only relatively recently found out the name for the sickness which has been my silent companion for many years.  Doctors now believe that I have had the disease since about the age of 7 – when large ulcers started to…
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15Dec 2011

Set back

By Amanda 15 Dec 2011 0 The Sickness 6-mercaptopurine, 6-MP, Azathioprine, compassion, corticosteroid Permalink 0

I know most people would probably think I am dead by now, I realise its been a while.  I suppose there are a few reasons for that. Today was my medication review... after the last one, it could have gone either way - but I had a feeling it would be bad. This week has really been ...

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27Sep 2010

Reaching 125

By Amanda 27 Sep 2010 0 The Real Life, The Sickness Autoimmune, Azathioprine, Coeliac Disease, Crohns Disease, cytotoxic Permalink 0

I have finally reached my full dosage of Imuran – but just cause I am taking it doesn’t mean I am any more comfortable with it.

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Down with the Sickness

the truth about chronic illness

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