Down with the Sickness

the truth about chronic illness

  • My Story
  • AboutWho am I?  That’s a very good question. So who am I – really?  That’s a remarkably good question – and one I have only just been able to answer myself. I am a daughter, a sister, a friend and a foe.  I am a lover, a fiancè, a home owner and a mortgage holder.  I am an employee, a manager, a marketer and a graphic artist.  I am a gothic, a groupie and occasionally a weirdo.  I am a writer, a reader and my own worst critic.  I am also chronically ill.  I have Ileocolic, stricturing Crohns disease. I was diagnosed with Crohns Disease on the 28th of April 2010 – after a long struggle with bowl obstructions and a history with the disease dating back up to 20 years. Since my dignosis I am desperatly trying to find balance between all these different aspects of me. My history with the disease As I mentioned above – I have only relatively recently found out the name for the sickness which has been my silent companion for many years.  Doctors now believe that I have had the disease since about the age of 7 – when large ulcers started to…
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26Apr 2012

Psychological Involvement

By Amanda 26 Apr 2012 0 The Sickness active, chronic illness, contact, corticosteroid, crazy Permalink 0

I've been treated for Crohn's disease for two whole years - and I'm into my third. On contact, a Crohn's patient with active disease is usually put on a moderate course of a corticosteriod called Prednisone.  Its used to treat a range of autoimmune diseases on contact or as patients come out of remission.  So its ...

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16Apr 2012

Crohn’s… meet sledge hammer

By Amanda 16 Apr 2012 0 The Real Life, The Sickness Abdominal MRI, agressive, biological treatments, Crohn's Treatment, Crohns Permalink 0

Just when you walk into a review thinking you know what your doctor is going to say.... I think it's one of the things I hate the most about this disease - how unpredictable it is, well that, and how fast things change. Let me take you back one year.... I was told I was mostly ...

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09Feb 2011

… it’s who you know.

By Amanda 09 Feb 2011 0 The Real Life, The Sickness activist, biologica, cancer, corticosteroids, Crohn's Treatment Permalink 0

It’s not what you know; its who you know. Actually its both. Be informed, be strong and fight for serious illness like IBD to finally be taken seriously.

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Down with the Sickness

the truth about chronic illness

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