the truth about chronic illness
It's May - in Australia May is Crohn's and Colitis awareness month. In the beginning - just after my diagnosis, I was going to be a crusader for this disease... I was going to spread awareness... raise money... do all the things. Today - I've had a total change of mind and heart. I still maintain ...
I've had a real struggle the last two weeks. I've had Influenza A for a while now and every little action has been harder than it should be. Getting up is hard. Working my main job is hard. Working my second job is hard. Housekeeping is hard. Relating to people is hard. It's all been harder ...
So here I am... on a Tuesday, middle of the day... at home. Am I sick? No - well kinda, but that's a longer story. No, I am officially unemployed for the first time in my adult life. I shouldn't say that. I am actually self employed... but I think that's just semantics at this point. What ...
Self Respect is defined as pride and confidence in oneself. I'm so sad. Not depressed, no I don't mean depressed. I mean sad. Like I don't feel like I can possibly manage a smile. Like the slightest word would have be burst into tears. Sad. It started last week while I was applying for leave. Leave, ...
I’m a Tenpin Bowler - usually at this point I hear fits of laughter from whoever I’m talking to. Followed by being told it’s not a sport. Yes, really, I go to Tenpin Bowling competitions. Yes, it’s a sport. And yes, it’s a source of constant disappointment that people react that way. I have been ...
I had my review last week... I had my butt cheeks clenched for days considering I knew that my GI would probably not approve of my choices in holiday eating establishments. I had the worst feeling that my support person (my husband) would have his phone out showing my doctor that I was eating God ...
This is a very brief post because, quite literally, my panties are in a bunch about something I just read.... Having been born with the assorted party pack of autoimmune disorders I get sent a lot of medical reading - from a lot of different sources. Today I was sent a story about links between two chronic ...
You know the sludge at the bottom of the gene pool? I'm pretty sure when they made me they just scraped all that up and made it into a person That's my normal lead in when I'm going into hospital. I used to use it as a joke - you know, something to lighten the mood ...
Going back even 3 years - the thought of having less than $5k in savings at any one time (for an emergency) would cause me so much stress - it would keep me awake at night (or, that could of just been the Prednisone)… things have really really changed for me and for us. I’m pleased ...
Hahahaha. Almost 2 weeks ago, on the 10th of June I was at the hospital for my cardiology appointment with, for lack of better terminology, the electrical specialists of the heart. After going on (and on and on) about risks and pacemakers and open heart surgery and DVT we finally got to the wait time. ...
